Sleep Patterns in Young Children with Autism Spectrum Disorder
Are you interested in learning about how your child sleeps? Are you interested in participating in a research study?
This study is being done to learn about child and family characteristics as they relate to sleep habits and patterns. As part of the study, your child will receive a diagnostic evaluation. You will be asked to complete questionnaires, document your child’s sleep habits and have your child video-recorded. You will receive a summary of our findings and recommendations to improve your child’s sleep.
We are looking for families in the Gainesville area to participate in our study. To be eligible to participate:
- Your child must be between 2 and 6 years of age
- Your child must have a diagnosis of an Autism Spectrum Disorder
If you would like more information about the study, please contact the Principal Investigator:
Cynthia Johnson, Ph.D., BCBA-D
UF & Shands
Department of Clinical and Health Psychology
College of Public Health and Health Professions
1225 Center Dr.,
Room 3130 PO Box 100165
Gainesville, FL 32610-0165
352 273 5410
Study ID: IRB201500557 Date Approved: 1/7/2016 Expiration Date: 9/28/2018
An Examination of Individualized Trial-Based Functional Analysis with Intervention in the Home for Young Children with Autism Spectrum Disorder
Do you have a young child (age 3-5) with or at risk for autism spectrum disorder who exhibits problem behavior? Consider participating in this research study.
I am conducting a research study to test an assessment method called trial-basedfunctional analysis. This will help practitioners and family members determine factors in the home that might be contributing to children’s problem behaviors. I will also design an intervention program that can help you change these factors.
Eligibility for the research study:
- Child between ages of 3-5
- Eligible for Exceptional Student Education (ESE) services under categories of Autism Spectrum Disorder or Developmentally Delayed
- Exhibits problem behavior in home routines
- Willingness to schedule weekly home visits for approximately 3-4 months
For more information, please contact:
Debra Prykanowski, doctoral candidate at the University of Florida
The Anita Zucker Center for Excellence in Early Childhood Studies
Study ID:IRB201700212 Date Approved: 5/17/2017 Expiration Date: 5/17/2018
The aViation Study
Sarkis Clinical Trials is currently recruiting patients for the aViation study. The aViation study will test if an investigational study drug can improve the social communication and interaction skills of 5-to-17 year olds with ‘high-functioning’ ASD.
You can find out more information about the trial here: https://www.theaviationstudy.com/
Questions? Please call Sarkis Clinical Trials at 352-333-0094
Wandering in Children with ASD
Wandering by children with ASD and other developmental disorders is a significant safety concern. It is estimated that more than 250,000 children with disabilities wander away from adult supervision each year. Few researchers have looked at this major issue, and there has been little focus on prevention measures and the impact that wandering concerns have on families.
Cohen Children’s Medical Center of New York is conducting a major national study about wandering, and we very much want you to participate.
It takes just a few minutes to complete the anonymous, on-line questionnaire. If enough families complete our questionnaire, then:
We will have the most representative study done to date – giving voice to as many families as possible
We can help guide families like yours about which prevention strategies seem to be most effective
We can document the impact that wandering has on families in terms of activities and household stress
Please click HERE to complete the survey. You may also go to www.WanderingResearch.com to take the survey, request a copy of our results, and be contacted regarding a follow-up research project related to wandering.
We thank you in advance for your kind cooperation.
Laura McLaughlin, Research Assistant
On behalf of:
Andrew Adesman, MD
Chief, Developmental & Behavioral Pediatrics
Cohen Children’s Medical Center of New York
Professor of Pediatrics
Hofstra Northwell School of Medicine
Visit us at Northwell.edu
This NIH-funded research* project offers education and support to parents with young children who have ASD.
Researchers will use online learning and support to provide parents of children with Autism Spectrum Disorders with information, resources and training in:
- Application of the principles of applied behavior analysis to improve valued family routines (community outings, meals, bedtime)
- Addressing children’s challenging behavior
IRIS Educational Media will conduct a research study in early 2017. Participants will be randomly assigned to one of two online groups, Practiced Routines or Teaching Routines to Children with ASD. If you are interested in participating please click here: http://bit.ly/aptscreen
*This research is funded by the National Institutes of Health, grant #2R44MH102845-02 awarded to IRIS Educational Media.
Please direct questions to
Email: Tracy Raulston
Call toll free: 1 (877) 343-4747 Ext. #203
Help Advance the Science of Autism
UM-NSU CARD is asking for your participation in a new landmark autism research project called SPARK. Joining SPARK is simple –register online at www.SPARKforAutism.org/card and provide a DNA sample via a saliva collection kit, shipped to your home. The mission of SPARK is to speed up research and advance the understanding of autism. By participating, you help make new research possible that was not possible in the past. Individuals with autism receive $50 gift card for their participation. For more information, you can contact SPARK@psy.miami.edu. SPARK is funded by the Simons Foundation for Autism Research Initiative (SFARI).
Post-Secondary Transition Planning for Adolescents and Young Adults with ASD
We are looking for teenagers and young adults (ages 14 to 22) with autism spectrum disorder, their parents or caregivers, and their service providers to participate in a study to help us better understand experiences with collaboration during the postsecondary-transition planning process. Specifically, we seek to better understand about how each person works together to ensure the needs of the adolescent/young adult are met before he or she leaves high school and what factors impact collaboration. If you choose to participate, you will be asked to take part in an interview lasting between 60 to 90 minutes. Interviews will be conducted face-to-face, by phone, or by video conferencing (e.g., Skype or Google Hangout) at your convenience. In addition, we will ask parents/caregivers and service providers to fill out a brief demographic questionnaire. All information collected will be kept confidential. Through this research, we hope to generate knowledge that will inform future research and practice.
Please contact Elizabeth Klinepeter at email@example.com to indicate your interest in participation or with any questions.
Child Abuse Prevention and Sexuality Education
We are looking for parents of children with Autism Spectrum Disorder to participate in a study that has been approved by the Institutional Review Board at Florida International University. The purpose of this study is to examine your knowledge level regarding child abuse and your concern about your child’s safety. You will also be asked about your comfort level with providing sexual education and sexual abuse prevention information to your child. Children with ASD have been found to be at an increased risk for abuse, but there are few programs to help parents talk to their children about this problem. This study seeks to determine how big of a concern sexual victimization is to you and how willing you are to talk to your child about it. The study will only take about 15-20 minutes for you to respond to questions through an anonymous on line survey. All of the information you provide will be confidential and no identifying information will be used.
We are hopeful that the results of this study will help us learn more about what parents of children with ASD are concerned about regarding sexuality education. This information can help inform future programming for parents. Please click on link to get started:
Online Survey Exploring Heritability of Autism
As part of research at Maastricht University, we seek participants to complete our online survey about the heritability of Autism Spectrum Disorder (ASD) traits. The only requirement is that you are the biological parent of an individual over 4 years old (with or without ASD). Please note: we need parents of typically developing individuals for this study! All participants will be entered in a lottery for two $50 gift cards. By contributing your time, you can help improve our understanding of ASD! To learn more and to participate, please visit our research website: www.autism-research-at-maastricht.com. Thank you for your time.
An Evaluation of Functional Analysis Conditions to Assess Food Selectivity
Provided by: The Behavior Analysis Research Clinic
In the Psychology building on the University of Florida’s campus (Room 375), we are providing a service for children with and without intellectual disabilities or autism who engage in restricted eating or mealtime patterns. For these children, we will conduct a functional analysis to identify why they engage in food selectivity followed by potential treatments to increase the variety of food consumption.
Your child may be eligible if:
-They can feed themselves.
-The are ‘picky eaters’.
-They refuse to eat most novel foods that are presented.
-They do not eat food from a certain category (e.g., no veggies)
-They can consume foods by mouth safely (i.e., can chew and swallow)
Please contact us at firstname.lastname@example.org or 352-273-2184.
(Approved by University of Florida Institutional Review Board 02, Protocol #2014-U-0475, For use until 4/24/2015)